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"We help children fight back..."

Mission Statement:
The M.U. Foundation is a charitable New York State registered non-profit 501 (c) 3 corporation (pending federal registration) established in 2006. Our mission targets victims of childhood ailments such as cancer, blood disorders, seizures and other life threatening childhood illnesses. Through donations and funds received via various fundraising events, we assist families coping with the financial burdens associated with a sick child. Additional funds, not to exceed 50% of gross donations, may be contributed towards facilities conducting moral/humane research towards a cure/treatment of the multiple childhood cancers/illnesses.

Why this mission?
The M.U. Foundation is a Christian based organization believing that “all children matter to God and therefore need to matter to us.”  The effects of childhood illnesses are not only devastating to the patient but to the family as well. We have established the foundation in memory of Muhammad Usmani, a beloved family member and charitable businessman, who succumbed to leukemia.

Some current statistics are as follows:

  • What is Epidermolysis Bullosa?

  • Epidermolysis Bullosa (EB) is an illness that causes the skin to be fragile. Because the skin is so fragile, it can be easily injured, causing painful blisters to form. These blisters can cause serious problems if they become infected.

  • Some people with EB have a mild form of the disease with few blisters. For others, there may be many blisters on the skin. Some people develop blisters inside the body - in places such as the mouth, stomach, esophagus (the tube that allows food to move between the throat and stomach), bladder, and elsewhere.

Other disease facts:

  •  Cancer is the #1 killer of children under the age of 14 yrs. next to accidents.
  • Even with insurance coverage, families can expect to spend $40,000/year. The financial burden further compounds the emotional and spiritual hardships experienced by the entire family.
  • More than 10,000 children are diagnosed with cancer annually.
  • More than 1,500 children will die within 1 year of diagnosis.
  • Research has increased survival rates from 58% in 1977 to 79% in 2002.

Our goal…
With each event, we hope to raise enough funds to effectively decrease the financial burden a family is experiencing in treating their child’s illness. In a broader scope we hope to bring greater awareness of these diseases and the constant flow of funds necessary to sustain effective research. In collaboration with event participants, health care organizations and other charitable organizations, the M.U. Foundation is committed to being an integral part of the team fighting for the lives of these afflicted children one family at a time.

Sincerely,
David Negron, President and Co-Founder

 

Derek/casey.JPG

Please help Casey...see upcoming events tab and most of all PRAY

Click here to download flyer

Sunday, May 3, 2009

Next benefit ride...

Ride For Casey

Casey suffers from Epidermolysis bullosa (EB).

Benefit scheduled September 13, 2009 Patchogue Fire Department, 15 Jennings Ave., Patchogue, New York 11772

9:36 pm est 

Tuesday, October 7, 2008

Sweet success!

Thank you all who made the "Autism Ride For Derek" a success. We faced some difficulties including a downed brother rider (thank God Chris is OK), rain, running on reserve and a flat tire. To my brothers at BACA "you are awesome!" - Councilman Steve Flotteron gave an inspiring speech and has restored my faith in local government. Mike D'Arcy of the Institute for Children with Autism, Riverhead, N.Y. educated us on Autism Spectrum and enabled us to help identify and guide victims of this disorder towards appropriate management.

Despite a low number of riders (rain), we were able to provide a significant amount of money to Derek and his family to help defray costs of health care. Derek's family only requested that we raise awareness regarding autism and I believe this was well accomplished.

To those who missed it; the food, auction, music, ride, people and most of all Derek made the whole day worth while.

We are in the process of scheduling our next ride. We accept donations year round and hope to ride with you soon. Remember "we help kids fight back".

9:03 am est 

Wednesday, February 6, 2008

Ride for Derek!
Next ride and fundraiser currently scheduled for Sunday September 28, 2008. Details to follow.
8:18 pm est 

Thursday, October 18, 2007

T-shirt orders are in! Please call #631-338-9677 if you have not received your order.
1:08 pm est 

Monday, October 1, 2007

Sweet Success!
WOW! What an experience. Bottom line is that we raised over $6000 that will go directly to Gabbi and her family. More than 82 motorcycles and 186 people attended the event. The motorcycle ride to Martha Clara Vineyards was fantastic. Everyone survived without any mishaps. The celebration at Brennans was a big hit. The items donated for the Chinese auction baskets were well received and generated lots of funds. I cannot thank Gabbi and her family enough for letting us be a part of their lives. We hope and pray the best for them always. Lord willing she will continue to heal and grow beyond the beautiful young lady she already is. Thank you all for making this event such a success. We look forward to our next event to be announced by 06/2008. God bless all...
6:37 pm est 

2009.05.01 | 2008.10.01 | 2008.02.01 | 2007.10.01 | 2007.09.01 | 2007.08.01

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Please donate anytime!
Donations will be applied toward upcoming events.
Return to our website regularly and stay apprised of upcoming fundraisers.

Please stay in touch to offer comments, volunteer or join our mailing list.
e-mail:
David@mufoundation.net

Privacy statement: The M.U. Foundation and it's officers will not sell or distribute your personal information provided. We use the information you provided strictly for the registration/donation purposes you intend as requested on our registration page.